News and Events
9th Lynch Syndrome Education Night for families
who want to learn the latest on Lynch Syndrome formerly known as Hereditary Non-Polyposis Colorectal Cancer (HNPCC)
Date: Tuesday, June 13th, 2023
Place: Zoom Virtual Event
Many thanks to all who attended, you can view the entire event using the link below:
3rd Familial Polyposis Education Night, May 11, 2021
For families who want to learn the latest on FAP & MAP
Date: Tuesday, May 11, 2021
Place: Zoom Webinar
Time: 7:00 p.m. – 9:30 p.m.
8th Lynch Syndrome Education Night for families
who want to learn the latest on Lynch Syndrome formerly known as Hereditary Non-Polyposis Colorectal Cancer (HNPCC)
Date: Wednesday, September 25th, 2019
Place: Mount Sinai Hospital, 600 University Avenue, Toronto, 18th Floor Auditorium
For Videos and slides, click here
2nd Annual Polyposis Education Night, November 7, 2017
For families who want to learn the latest on FAP & MAP
Date: Tuesday, November 7, 2017
Place: Mount Sinai Hospital, 600 University Avenue, Toronto
18th Floor Auditorium
Time: 7:00 p.m. – 9:30 p.m.
Refreshments at 6:45pm
To RSVP or for more information, please go to: http://zanecohencentre.com/event/polyposis
7th Annual Lynch Syndrome Education Night, November 1, 2017
For families who want to learn the latest on Lynch Syndrome formerly known as Hereditary Non-Polyposis Colorectal Cancer (HNPCC)
Date: Wednesday, November 1, 2017
Place: Mount Sinai Hospital, 600 University Avenue, Toronto
18th Floor Auditorium
Time: 7:00 p.m. – 9:30 p.m.
Refreshments at 6:45pm
To RSVP or for more information, please go to: http://zanecohencentre.com/event/lynch
This event is sponsored by Ann McLaughlin and Joe Aiello.
Polyposis Education Night, September 24th, 2015
We were pleased to present the Polyposis Education Night on September 24th, 2015. The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases.
Evening highlights included informative talks on the following:
- The History of the Familial Polyposis Registry, from Terri Berk, who many of you remember as the former coordinator of the polyposis registry
- The Genetics of Familial Polyposis, from Kara Semotiuk & Laura Winter, Genetic Counsellors at the FGICR
- Psychosocial Aspects of Familial Polyposis, from Dr. Tae Hart, Clinical Psychologist and Researcher
- Surgery in Familial Polyposis, from Dr. Zane Cohen, Colorectal Surgeon and Director of the Zane Cohen Centre for Digestive Diseases and Co-Director of the FGICR
- Familial Polyposis: A Patient Perspective
Please find the links and videos to these talks here: Link
6th Lynch Syndrome Education Night, May 27th, 2015.
We were pleased to present the 6th Lynch syndrome education night on May 27th, 2015. The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases.
The audience - the largest to date - heard the latest information about cancer research from Dr. Robert Gryfe. He has completed several studies on Lynch syndrome and will discuss the latest research on cancer risk, screening and prevention in Lynch syndrome.
Dr. Jeff Spodek is the Chief of Urology at the Rouge Valley Health System. He works at the Centenary site in Scarborough, Ontario. He completed his medical training at the University of Western Ontario in 1998 and completed his fellowship training in Urology in 2003 at the University of Western Ontario. He will be giving an overview on the types of urinary tract cancers seen in Lynch syndrome including kidney, ureter and bladder cancers.
Brent Mizzen is Director, Policy Development for the Canadian Life and Health Insurance Association (CLHIA). He is responsible for policy development and analysis on industry issues as well as responses to policy demands from government. Brent will give us the background on insurance and genetic testing, how companies assess individuals for insurance policies, and what the industry's position is on genetic testing.
The event ended with a long question and answer discussion with our panel of experts dealing with everything from diet and nutrition to the risk of developing secondary cancers in LS patients with a previous diagnosis.
Feedback from the patients and their families noted that ‘knowledge is power’ and that there are ‘not many other information sources’ available.
Looking forward to future events, the consensus was summed up by a patient who wrote ‘thank you, you have helped my family enormously”.
Please find the links and videos to these talks here: Link
NEW IN FALL 2015: A Meeting for Families with Familial Polyposis
Further details to come
5th Lynch Syndrome Education Night, June 11th, 2013.
We were pleased to present the 5th Lynch syndrome education night on June 11, 2013. The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases.
The audience - the largest to date - heard the latest information about cancer risk and screening from Dr. Robert Gryfe and Dr. Sarah Ferguson. They highlighted the differences between the Lynch syndrome genes (MSH2, MLH1, MSH6, PMS2 and EPCAM) on the type of cancer that develops and the risks associated.
Jenna Albiani, PhD student, clinical psychology, taught us about the experience of parents with Lynch syndrome and gave great advice on talking to children about genetic testing. Kathryn Cosgrove shared her story about fighting cancer and having Lynch syndrome. Her session brought a very personal and moving perspective.
The event ended with a long question and answer discussion with our panel of experts dealing with everything from diet and nutrition to the risk of developing secondary cancers in LS patients with a previous diagnosis.
Feedback from the patients and their families noted that ‘knowledge is power’ and that there are ‘not many other information sources’ available.
Looking forward to future events, the consensus was summed up by a patient who wrote ‘thank you, you have helped my family enormously”.
Please find the links to these talks.
Dr. Robert Gryfe - Highlights from the latest research in Lynch syndrome
Slide Presentation
Dr. Sarah Ferguson - Gynecologic Cancer in Women with Lynch Syndrome
Slide Presentation
Jenna Albiani - The Next Generation: The Experience of Parents with Lynch Syndrome
Symposium on Hereditary Gastrointestinal Cancer, June 17th, 2011
June 17th, 2011
- To discuss tumour pathology in terms of identifying and managing Lynch Syndrome patients
- To describe screening and management for Lynch, non– Lynch Syndrome and gastric cancer patients
- Outline and evaluate current criteria to identify Lynch syndrome, MutYH–Associated Polyposis and Familial Adenomatous Polyposis
- The event will run from 9:30 am to 4:00 pm
- Lunch and light refreshments will be provided
To register online click here
Speakers
- Zane Cohen, MD, FRCSC
Director, Zane Cohen Center for Digestive Diseases
Chairman Division of General Surgery, Department
of Surgery, University of Toronto; Professor - Steven Gallinger, MSc, MD, FRCSC
Co-Director, Zane Cohen Center for Digestive Diseases
Head, Division of Hepatobiliary/Pancreatic
Surgical Oncology, UHN; Professor, Department of
Surgery, University of Toronto - Aaron Pollett, MSc, MD, FRCPC
Staff Pathologist, Mount Sinai Hospital; Assistant
Professor, Department of Laboratory Medicine and
Pathobiology, University of Toronto - Eugene Hsieh, MD, FRCPC
Assistant Professor, Department of Laboratory Medicine
and Pathobiology, Faculty of Medicine, University
of Toronto; Staff Pathologist Sunnybrook
Health Sciences Centre; Women’s College Hospital - Blaise Clarke, MD
Staff Pathologist, Assistant Professor, Department
of Laboratory Medicine and Pathobiology, The University
Health Network, Toronto General Hospital - Lea Velsher, MD, CM, FRCPC, FCCMG
Clinical Geneticist, North York General Hospital
Lecturer, Department of Laboratory Medicine, University
of Toronto - Robert Gryfe, MD, PhD, FRCSC
Staff Surgeon, Department of Surgery, Mount Sinai
Hospital, Princess Margaret Hospital; Assistant Professor,
Department of Surgery, University of Toronto - Carol Swallow, MD, FRCSC
Head, Division of General Surgery, Mount Sinai Hospital;
Staff Surgeon, Department of Surgical Oncology,
UHN, Princess Margaret Hospital; Associate
Professor, Department of Laboratory Medicine and
Pathobiology, Professor Department of Surgery,
University of Toronto - Peter J. Ainsworth, BSc, MB, ChB, PhD, FRCPC
Director, Molecular Diagnostic Lab London Health
Sciences Centre - Eva Tomiak, MD, FRCPC, FCCMG
Clinical Geneticist, Inherited Cancer Programme,
Department of Genetics, Children’s Hospital of
Eastern Ontario; Assistant Professor, Department
of Medicine, University of Ottawa