The SAFE Study (Survey on Awareness of Extraintestinal Inflammatory Bowel Disease)

Details of Research

Contact: Reka Thanabalan, Research Coordinator
416-586-4800 ext 7636

Primary Investigator: Dr. Geoffrey Nguyen

Co-investigators:  Dr. Vivian Huang

Enrolment: Ongoing

Objective: Objective is to assess inflammatory bowel disease patients' awareness of extra intestinal manifestations associated with inflammatory bowel disease and inquire about where patients obtain their information on IBD.

Expectation: An asssessment of IBD patients' awareness of complications related to their bowel disease will help to identify areas in patient education that require improvement.   This is an an area of patient management that might be a barrier to patient compliance with medications and follow up.   If there is a true lack of awareness, educational forums and other events may be beneficial to the IBD patient population.

Eligibility: All patients seen in out-patient clinics at Mount Sinai Hospital over 18 years of age who has a confirmed diagnosis of IBD (either Crohn's Disease or Ulcerative Colitis).

Participation: Participation is very brief and involves completing a 10 – 15 minute questionnaire on information resources and support, opinion regarding possible symptoms that may/may not be associated with inflammatory bowel diseases & questions about some personal information such as age, gender, and ethnicity.